for individuals
people impacted by rare disease are at the core of our mission

We are a group of people who started with dan’s passion that through collaboration and customization, we can build better communities that provide emotional support, enhance knowledge and advance science through clinical trials. Enjoy our communities – and if you don’t find one that suits you, please contact us and we can chat about building one for your group!

join a onevoice guided community
get connected

Join a onevoice community today, and get the benefits of meeting other similarly situated people and have access to vetted knowledge & clinical trials.  Our communities are tailored for a specific disease so you’ll meet and get insights from people who have veteran experience in that particular disease.

research done for you

It is hard to do research in a rare disease – even harder to know what to read or watch and figure out what’s credible and what’s bunk!  Our  guided communities have knowledgeable experts who hand-curate written and visual information including science, videos, interviews and our linkWheel.  Just the good stuff gets in!

find a clinical trial

Our guided communities make it easier to advance science and the search for treatments by offering clinical trial information including a tool that matches people with trials that are actively recruiting.  Visit the clinical trial education center for videos on what it means to participate in a trial, and get answers to many typical questions.

visualize and share your rareJourney
create yours

Have you ever wanted to see your challenges, experiences and triumphs with rare disease over time? Or print it for support professionals rather than going through it “all over again” with each new doctor or counselor? myrareJourney is your private space to upload photos, videos, hashtags and emotions about all aspects of your experiences and life!

donate data, get hints

Make the choice to share your rareJourney with other rareJourney members, researchers and even your own support team. We can give you all sorts of “hints” ranging from videos to watch, clinical trials to join, treatments to discuss with your doctor and so, so, so much more!

safety

We understand your healthcare information is important to keep safe and private. We employ cloud-based technology that complies with HIPAA requirements so your information is secure.

join our rareLife community
beta testers, community managers, curators, data analyzers

contact us about potential opportunities to work with our team to build, test and interact with our technology products.

join us!