We know rare.
We think rare.
With patients, advocates, and caregivers
at the center, we are shaping the future of rare
disease treatment development.
For us, it's personal.
WHAT WE DO
Rare is personal.
Our innovative approach
DIGITAL EXPERIENCES
Safe conversation spaces
Our secure, HIPAA-compliant community forum offers a venue for empathy, insight, and connection.
Trusted resources
Our expert team members curate the best, most reliable rare disease resources from across the web.
Custom content offerings
Our sites are tailored to meet the needs of the community, with optional features including clinical trial education content and our proprietary Clinical Trial Locator tool.
MEDICAL PUBLICATIONS
Progressive publication thinking
Like everything else in rare, publications are different and deserve a fresh patient-, advocate-, and caregiver-centered approach.
Enhancing the rare presence
Just 0.2% of medical literature is composed of rare-focused publications. We help you find your share of voice in rare. It is so important that we do.
Core commitment
We believe in open access. We believe in patients as authors. We believe in informing trial participants of results as part of the publications plan. Are you ready to implement patient-, advocate- and caregiver-focused change in your publications programs?
SCIENTIFIC COMMUNICATIONS
Rare insights
Understand the patient journey, define the burden of disease, find patients — our experienced team uses rare community insights to help you build a strategic foundation that is designed to work in your rare ecosystem.
Rigorous content
Build clinical suspicion, reduce diagnostic delays, optimize care — our advanced-degree writers, strategists, and community experts collaborate to develop content that educates and motivates.
Dynamic events
Build community, motivate, generate insights — our live and digital events employ adult learning principles and experiences that enable change.