{"id":29,"date":"2024-11-22T01:32:23","date_gmt":"2024-11-22T01:32:23","guid":{"rendered":"https:\/\/rarelifesolutions.com\/?page_id=29"},"modified":"2025-07-21T13:47:30","modified_gmt":"2025-07-21T13:47:30","slug":"true-home","status":"publish","type":"page","link":"https:\/\/rarelifesolutions.com\/","title":{"rendered":"True Home"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"29\" class=\"elementor elementor-29\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1e0f7d9a e-flex e-con-boxed e-con e-parent\" data-id=\"1e0f7d9a\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-26d6356 e-con-full e-flex e-con e-child\" data-id=\"26d6356\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-04bc80f elementor-widget elementor-widget-theme-site-logo elementor-widget-image\" data-id=\"04bc80f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"theme-site-logo.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/rarelifesolutions.com\">\n\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1536\" height=\"326\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2024\/11\/rareLife.png\" class=\"attachment-full size-full wp-image-83\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2024\/11\/rareLife.png 1536w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2024\/11\/rareLife-300x64.png 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2024\/11\/rareLife-1024x217.png 1024w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2024\/11\/rareLife-768x163.png 768w\" sizes=\"(max-width: 1536px) 100vw, 1536px\" \/>\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ff3a6e3 e-con-full e-flex e-con e-child\" data-id=\"ff3a6e3\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-374d3af3 elementor-widget elementor-widget-heading\" data-id=\"374d3af3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">WE KNOW RARE.<br>WE THINK RARE.<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-61f73cf e-con-full e-flex e-con e-child\" data-id=\"61f73cf\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f655eeb elementor-widget elementor-widget-text-editor\" data-id=\"f655eeb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>We improve rare drug development and commercialization for industry and the families they serve.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5bfa24fa elementor-align-center elementor-mobile-align-center elementor-widget elementor-widget-button\" data-id=\"5bfa24fa\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"#Contact\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Contact us<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ef31528 e-con-full e-flex e-con e-child\" data-id=\"ef31528\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-430217a elementor-widget elementor-widget-text-editor\" data-id=\"430217a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>For us, it&#8217;s personal.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-36c6fd31 e-flex e-con-boxed e-con e-parent\" data-id=\"36c6fd31\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;background_motion_fx_motion_fx_scrolling&quot;:&quot;yes&quot;,&quot;background_motion_fx_devices&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-624c4c81 e-con-full e-flex e-con e-child\" data-id=\"624c4c81\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5e2ffb32 elementor-widget elementor-widget-heading\" data-id=\"5e2ffb32\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Who We Are<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-46f44d1c elementor-widget elementor-widget-text-editor\" data-id=\"46f44d1c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Individually we are scientists, planners, creatives, writers, entrepreneurs, thinkers, and doers. We are also the parent of a child with a rare disease, we are the friend and family member of someone living with rare disease, we are the caregiver, we are the carrier, we are the face of rare disease \u2014 together, we are rareLife solutions.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-40c3ade elementor-widget elementor-widget-heading\" data-id=\"40c3ade\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Rare is personal<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-041574e elementor-widget elementor-widget-text-editor\" data-id=\"041574e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>We have broad expertise and experience across more than 65 rare indications, including a growing list of oncology indications. We offer rare compassion and focus.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7c74a7c elementor-widget elementor-widget-video\" data-id=\"7c74a7c\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/05\/rareLife-solutions-promo-video_2-from-DD-v2_new-logo-1May20252.mp4\" controls=\"\" preload=\"metadata\" controlsList=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-2b2e575d e-con-full e-flex e-con e-child\" data-id=\"2b2e575d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7a6d61f e-flex e-con-boxed e-con e-parent\" data-id=\"7a6d61f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-336956b e-flex e-con-boxed e-con e-parent\" data-id=\"336956b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-f779e1c e-con-full e-flex e-con e-child\" data-id=\"f779e1c\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f259084 elementor-widget elementor-widget-image\" data-id=\"f259084\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"800\" height=\"422\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-1024x540.jpg\" class=\"attachment-large size-large wp-image-125\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-1024x540.jpg 1024w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-300x158.jpg 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-768x405.jpg 768w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-1536x810.jpg 1536w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-2048x1080.jpg 2048w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-a2b87bc e-con-full e-flex e-con e-child\" data-id=\"a2b87bc\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c6c1be2 elementor-widget elementor-widget-heading\" data-id=\"c6c1be2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">What We Do<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8683825 elementor-widget elementor-widget-text-editor\" data-id=\"8683825\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\tFrom the small, hard-to-reach communities that define rare disease groups, the stories and the connections they forge require a different approach. We offer a broad suite of services that are designed to make drug development and commercialization better for industry and families.\n\nOur publications and scientific communications services are structured into six categories: Strategy, Community building, Scientific scaffold, Content development, Events, and Internal training. As the full-service rare scientific agency, we craft a tailored blend of innovative solutions to meet our clients&#8217; unique needs.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-21bb763 e-flex e-con-boxed e-con e-parent\" data-id=\"21bb763\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-2686573 e-con-full e-flex e-con e-child\" data-id=\"2686573\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-429d2bc e-con-full e-flex e-con e-child\" data-id=\"429d2bc\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e52c5ee elementor-widget elementor-widget-heading\" data-id=\"e52c5ee\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Medical Publications<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-13b1dc6 elementor-widget elementor-widget-text-editor\" data-id=\"13b1dc6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\tOur rare philosophy focuses on 3 things: Science, Community and Access. Our medical publications program considers all of those critical factors in the development and execution of our client&#8217;s programs.<br><br>Some of our rare publications principles include:\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bef797d elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"bef797d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><b>Progressive publication thinking<\/b>: Like everything else in rare, publications are different and deserve a fresh, hyper-targeted approach.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><b>Enhancing the rare presence<\/b>: Just 0.2% of medical literature is composed of rare-focused publications. We help you find your share of voice in rare. It is so important that we do,  but it is more important that you do.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><b>Core commitments<\/b>: We believe in open access. We believe in patients as authors. We believe in informing trial participants of results as part of the publication plan. We believe in communicating results to the whole community via PLSPs and compliant social media posts.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-be43b6f e-flex e-con-boxed e-con e-parent\" data-id=\"be43b6f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-0484ae0 e-con-full e-flex e-con e-child\" data-id=\"0484ae0\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7df9366 elementor-widget elementor-widget-image\" data-id=\"7df9366\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-2-1024x683.jpg\" class=\"attachment-large size-large wp-image-128\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-2-1024x683.jpg 1024w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-2-300x200.jpg 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-2-768x512.jpg 768w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-2-1536x1024.jpg 1536w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-2-2048x1365.jpg 2048w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/patient-2-600x400.jpg 600w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-d45efd3 e-con-full e-flex e-con e-child\" data-id=\"d45efd3\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b3e0f5e elementor-widget elementor-widget-heading\" data-id=\"b3e0f5e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Scientific Communications<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cda868b elementor-widget elementor-widget-text-editor\" data-id=\"cda868b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Our approach to scientific communications celebrates that rare patients, advocates, and caregivers are critical shapers of their rare disease ecosystem.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-11141a0 elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"11141a0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><b>Rare insights<\/b>: Understand the patient journey, define the burden of disease, find patients - our experienced team uses rare community insights to help you build a strategic foundation that is designed to work in your rare ecosystem.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><b>Rigorous content<\/b>: Build clinical suspicion, reduce diagnostic delays, optimize care - our advanced-degree writers, strategists, and community experts collaborate to develop content that educates and motivates.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><b>Dynamic events<\/b>: Build community, motivate, generate insights - our live and digital events employ adult learning principles and experiences that enable change.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3a934bd e-flex e-con-boxed e-con e-parent\" data-id=\"3a934bd\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c4eac3f elementor-widget elementor-widget-heading\" data-id=\"c4eac3f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Meet Our team<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d6636de elementor-widget elementor-widget-heading\" data-id=\"d6636de\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h5 class=\"elementor-heading-title elementor-size-default\">When we say we live rare \u2013 we mean it. 70% of the rareLife team has been personally impacted by rare diseases. Here are some of our team\u2019s stories.<\/h5>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c76529f elementor-pagination-type-bullets elementor-arrows-position-inside elementor-pagination-position-outside elementor-widget elementor-widget-n-carousel\" data-id=\"c76529f\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;carousel_items&quot;:[{&quot;slide_title&quot;:&quot;Dan&quot;,&quot;_id&quot;:&quot;5a21d46&quot;},{&quot;slide_title&quot;:&quot;Michele&quot;,&quot;_id&quot;:&quot;f360033&quot;},{&quot;slide_title&quot;:&quot;Laura&quot;,&quot;_id&quot;:&quot;454cea1&quot;},{&quot;_id&quot;:&quot;8813638&quot;,&quot;slide_title&quot;:&quot;Mukund&quot;},{&quot;_id&quot;:&quot;d9df11c&quot;,&quot;slide_title&quot;:&quot;Patti&quot;},{&quot;_id&quot;:&quot;b39d016&quot;,&quot;slide_title&quot;:&quot;EJ&quot;},{&quot;_id&quot;:&quot;351e25c&quot;,&quot;slide_title&quot;:&quot;Hugh&quot;},{&quot;_id&quot;:&quot;03cf118&quot;,&quot;slide_title&quot;:&quot;Sonali&quot;},{&quot;_id&quot;:&quot;4df9a1f&quot;,&quot;slide_title&quot;:&quot;Lynda&quot;},{&quot;_id&quot;:&quot;6f34b2e&quot;,&quot;slide_title&quot;:&quot;Kim&quot;}],&quot;image_spacing_custom&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:0,&quot;sizes&quot;:[]},&quot;slides_to_show_tablet&quot;:&quot;2&quot;,&quot;slides_to_show_mobile&quot;:&quot;1&quot;,&quot;autoplay&quot;:&quot;yes&quot;,&quot;autoplay_speed&quot;:5000,&quot;pause_on_hover&quot;:&quot;yes&quot;,&quot;pause_on_interaction&quot;:&quot;yes&quot;,&quot;infinite&quot;:&quot;yes&quot;,&quot;speed&quot;:500,&quot;offset_sides&quot;:&quot;none&quot;,&quot;arrows&quot;:&quot;yes&quot;,&quot;pagination&quot;:&quot;bullets&quot;,&quot;image_spacing_custom_tablet&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;image_spacing_custom_mobile&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]}}\" data-widget_type=\"nested-carousel.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"e-n-carousel swiper\" role=\"region\" aria-roledescription=\"carousel\" aria-label=\"Carousel\" dir=\"ltr\">\n\t\t\t<div class=\"swiper-wrapper\" aria-live=\"off\">\n\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"1\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"1 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f342506 e-flex e-con-boxed e-con e-child\" data-id=\"f342506\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8cadc54 elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"8cadc54\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/T0J332USY-U311J2WQ4-c00ae39845de-512.png\" class=\"elementor-animation-grow attachment-full size-full wp-image-138\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/T0J332USY-U311J2WQ4-c00ae39845de-512.png 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/T0J332USY-U311J2WQ4-c00ae39845de-512-300x300.png 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/04\/T0J332USY-U311J2WQ4-c00ae39845de-512-150x150.png 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">Dan | Carrier and Caregiver<\/h4><p class=\"elementor-image-box-description\">Dan and his wife Nicole were recently married and pregnant with their 1st child, Nicole is of Ashkenazi Jewish descent while Dan is of Irish, Italian Catholic descent. Their pediatrician decided to test Dan for genetic diseases given Nicole\u2019s ancestry. Later that week they received a panicked call from the doctor because Dan tested positive for Tay Sachs Disease. The doctor urgently requested Nicole get tested as well. Fortunately, Nicole\u2019s test was negative. This experience was in the pre-internet days so the only information the family received was from the pediatrician who put quite a fear into the new couple as they were just entering into parenthood. Dan and Nicole now have 6 kids, all of whom are aware that they may be carriers too, and will get tested as part of their own family planning. As a caregiver, Dan was part of his mother\u2019s care team, who was taken too early by a very rare cancer. There were no treatments, no clinical trials and very little published information. Dan\u2019s family found they knew more about the disease than many of the physicians they met. <\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"2\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"2 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4af3a9e e-flex e-con-boxed e-con e-child\" data-id=\"4af3a9e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-de1c5c9 elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"de1c5c9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/03\/Michele-Photo.jpeg\" class=\"elementor-animation-grow attachment-full size-full wp-image-105\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/03\/Michele-Photo.jpeg 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/03\/Michele-Photo-300x300.jpeg 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/03\/Michele-Photo-150x150.jpeg 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">Michele | Rare Mom<\/h4><p class=\"elementor-image-box-description\">Michele\u2019s daughter Lizzie exhibited early symptoms that something was not right including being floppy at birth, very slow development and she had a hard time eating. At 2 years old, Lizzie began to rapidly gain weight. Her behavior was increasingly difficult to manage. It took 13 years to get a proper diagnosis of Prader-Willi Syndrome. Like many rare diseases there were no treatments available except behavioral medicines. Sadly, Lizzie was asked to leave her first 2 schools due to those behavior issues. At 19, she moved into group homes until her death at 31. The Lizzie her mother knew was full of love and care for her housemates and the most vulnerable individuals. She had an artistic sense and loved music. Her sense of humor tended towards enjoying adults doing silly things and her favorite roles were caregiver to others and walking Ringo the donkey at Camphill School where Michele was told; \u201cShe is the only one more stubborn than Ringo.\u201d<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"3\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"3 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-fed8d4d e-flex e-con-boxed e-con e-child\" data-id=\"fed8d4d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f5a0fcf elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"f5a0fcf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/05\/JGP_4606-copy-scaled-1.jpg\" class=\"elementor-animation-grow attachment-full size-full wp-image-144\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/05\/JGP_4606-copy-scaled-1.jpg 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/05\/JGP_4606-copy-scaled-1-300x300.jpg 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/05\/JGP_4606-copy-scaled-1-150x150.jpg 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">Laura | Rare Mom<\/h4><p class=\"elementor-image-box-description\">Laura\u2019s daughter Abbey was a seemingly healthy, athletic 13-year-old child. One evening Laura was contacted by a long-time family friend who said; \u201cAbbey\u2019s eyes seem enlarged\u2026kind of bulging? I\u2019m not sure how to describe it, but definitely different.\u201d As a precaution, Laura took Abbey to a family doctor then a specialist where she was diagnosed with Graves\u2019 disease and Thyroid Eye Disease. The family was both concerned and scared as they found tons of misinformation in social media including things like: \u201cI\u2019ve lost all my muscle mass\u2026When I wake I have to wait 15 minutes to be able to move\u2026\u201d and, \u201cI couldn\u2019t open a bottle of water and it was hard to pick up my baby.\u201d Like many rare disease families, they found it hard to find credible information anywhere. Fortunately, Laura has a science background and has worked in the pharma space for 25 years, so today the family are informed partners with Abbey\u2019s endocrinologist, and Abbey is thriving as a sophomore in college.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"4\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"4 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-eaa368b e-flex e-con-boxed e-con e-child\" data-id=\"eaa368b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-aeba699 elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"aeba699\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/05\/JGP_4350-1-scaled-1.jpg\" class=\"elementor-animation-grow attachment-full size-full wp-image-145\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/05\/JGP_4350-1-scaled-1.jpg 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/05\/JGP_4350-1-scaled-1-300x300.jpg 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/05\/JGP_4350-1-scaled-1-150x150.jpg 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">Mukund | Rare Son<\/h4><p class=\"elementor-image-box-description\">Mukund's father was misdiagnosed several times before finally being diagnosed with an uncommon type of throat cancer. The multiple delays and misdiagnoses resulted in the disease progressing to late stages. Throughout this process, Mukund and his siblings found that they knew more about what was ailing their father than did the physicians \u2013 a common theme among patients with rare diseases and their caregivers. The family witnessed their patriarch fighting a progressively losing battle before succumbing to the disease. Mukund also lost an uncle to ALS. For him, working to increase awareness and helping patients with rare diseases and their caregivers through improved medical communications is a personal mission.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"5\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"5 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5d5915e e-flex e-con-boxed e-con e-child\" data-id=\"5d5915e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b85c4cd elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"b85c4cd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/JGP_4539-scaled-1.jpg\" class=\"elementor-animation-grow attachment-full size-full wp-image-169\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/JGP_4539-scaled-1.jpg 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/JGP_4539-scaled-1-300x300.jpg 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/JGP_4539-scaled-1-150x150.jpg 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">Patti<\/h4><p class=\"elementor-image-box-description\">I have been touched in so many ways by the people who make up the rare disease community: patients and the mothers, fathers, siblings, spouses, and friends who care for and love these individuals and walk the rare walk with them every day. I have been inspired by the individuals who give so much of themselves to improve the rare experience: the champions who lead nonprofit organizations, the healthcare providers who treat with dedication and compassion, and the professionals at biopharmaceutical companies who discover and bring to market innovative new therapies designed to improve the lives of those living with rare disease. The whole rare ecosystem is a rich mix of hopes and struggles, defeats and victories. I count myself as fortunate that, through rareLife solutions, I can support rare families by working to build community and contribute toward the development and commercialization of life-changing rare therapies. Working in rare is a rare inspiration and a reason to give my all every day.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"6\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"6 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a0a4567 e-flex e-con-boxed e-con e-child\" data-id=\"a0a4567\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-bc26b07 elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"bc26b07\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/image-1-1-1.png\" class=\"elementor-animation-grow attachment-full size-full wp-image-168\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/image-1-1-1.png 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/image-1-1-1-300x300.png 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/image-1-1-1-150x150.png 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">EJ<\/h4><p class=\"elementor-image-box-description\">As a Client Services Director at rareLife solutions, I bring both a strategic mindset and a deep personal commitment to improving the lives of those affected by rare diseases\u2014including the patients, advocates, and caregivers (the PAC) who so dearly need the help of \"the village\". With so many rare conditions under-recognized and under-treated, I believe that well-executed educational initiatives\u2014developed through strong partnerships with industry, healthcare providers, and the PAC\u2014can be truly transformative for clinical practice and patient support. With this partnership, we continue to push for new therapies and advancements in treatment. This is the why EVERY day. Serving the rare disease community isn\u2019t just a professional goal\u2014it\u2019s a personal passion. I am proud to help shape programs that elevate awareness, foster earlier diagnosis, and support healthcare professionals in delivering better care. I look forward to continuing to lead collaborative initiatives that bridge knowledge gaps and improve outcomes in some of the most underserved areas of medicine.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"7\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"7 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4ca49e4 e-flex e-con-boxed e-con e-child\" data-id=\"4ca49e4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2d31177 elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"2d31177\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/07\/image-2.png\" class=\"elementor-animation-grow attachment-full size-full wp-image-174\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/07\/image-2.png 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/07\/image-2-300x300.png 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/07\/image-2-150x150.png 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">Hugh<\/h4><p class=\"elementor-image-box-description\">As a Senior Director of Solutions Development, I have the privilege of designing and delivering meaningful programs that directly support the rare disease community. Every initiative I lead is fueled by a deep sense of purpose\u2014because in rare, every detail matters, and every voice deserves to be heard. What inspires me most is the opportunity to translate complex challenges into tailored, impactful solutions that elevate awareness, accelerate understanding, and ultimately help improve outcomes for people living with rare and ultra rare conditions. Collaborating with patients, advocates, caregivers, and healthcare professionals, I\u2019m constantly reminded that this work is not just strategic\u2014it\u2019s deeply human. Contributing to the rare disease space means knowing that what we build together can drive change, foster hope, and bring visibility and a sense of connection to those who may feel unseen and alone. I\u2019m also proud to serve on Connecticut\u2019s Rare Disease Advisory Council's Awareness Committee \u2014 a meaningful way to stay connected and contribute at the local level, helping to shape policies and amplify the voices of the rare community close to home. It\u2019s a constant reminder to me of why this work matters.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"8\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"8 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-97d5bd1 e-flex e-con-boxed e-con e-child\" data-id=\"97d5bd1\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a2fbf96 elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"a2fbf96\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/Unknown-2-1-1.png\" class=\"elementor-animation-grow attachment-full size-full wp-image-166\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/Unknown-2-1-1.png 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/Unknown-2-1-1-300x300.png 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/Unknown-2-1-1-150x150.png 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">Sonali | Rare Mom<\/h4><p class=\"elementor-image-box-description\">When Sonali\u2019s son Ivaan turned nine months old, he began developing a swelling on the right side of his face. The swelling grew rapidly, prompting Sonali and her husband Arjun to consult Ivaan\u2019s paediatrician. Suspecting an infection, the paediatrician recommended an ultrasound, which was initially misread by the radiologist as acute bacterial parotitis. Based on this, Ivaan was prescribed antibiotics. However, as the swelling continued to increase, Sonali and Arjun sought opinions from multiple doctors and radiologists in search of an accurate diagnosis. Eventually, a radiologist friend of Sonali performed another ultrasound, suspected the swelling could be an infantile parotid hemangioma, and recommended she consult a senior radiologist for an MRI. The MRI was reviewed by the senior radiologist, who diagnosed Ivaan with infantile parotid hemangioma, a rare, benign tumor of the parotid gland. Fortunately, after several misdiagnoses and much persistence, Ivaan received the correct diagnosis and is now doing well. After this harrowing journey with her baby, Sonali carries a quiet, enduring empathy for those navigating the shadows of misdiagnoses and delayed treatment, especially in the world of rare diseases.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"9\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"9 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2123db5 e-flex e-con-boxed e-con e-child\" data-id=\"2123db5\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c1831bd elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"c1831bd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/un-1-1.jpeg\" class=\"elementor-animation-grow attachment-full size-full wp-image-165\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/un-1-1.jpeg 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/un-1-1-300x300.jpeg 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/06\/un-1-1-150x150.jpeg 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">Lynda | Rare Patient<\/h4><p class=\"elementor-image-box-description\">Lynda was misdiagnosed for a decade with exercise-induced asthma and was prescribed inhalers that were ineffective. One doctor said she was \u201cjust out of shape.\u201d During a stress test, a cardiologist noticed that Lynda\u2019s oxygen saturation dropped into the 80s and her blood pressure spiked. Her heart was healthy, so the cardiologist referred her to a pulmonologist with a very clear message: \u201cTell him to evaluate you and not just throw another inhaler at you. Something\u2019s wrong.\u201d After a series of tests, Lynda was diagnosed with bronchiectasis and Mycobacterium avium complex (MAC) infection. These organisms are harmless for most people but can cause serious lung disease in individuals with bronchiectasis. The cavitary form of the disease can be fatal. Standard treatment for MAC is a 12-18 month course of multiple antibiotics, some with serious side. MAC is slow growing, and Lynda\u2019s case is currently mild. She and her doctor have chosen watchful waiting along with daily nebulized 7% hypertonic saline and airway clearance techniques. MAC is everywhere, but developing an actual infection from it depends on a mix of environmental exposure and individual susceptibility. That specific combination makes it a rare disease. What was so frustrating for Lynda was the delay in diagnosis caused by lack of awareness.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" data-slide=\"10\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"10 of 10\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-cd7bb44 e-flex e-con-boxed e-con e-child\" data-id=\"cd7bb44\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-df7c376 elementor-widget-tablet__width-inherit elementor-widget-mobile__width-inherit elementor-widget__width-inherit elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"df7c376\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img loading=\"lazy\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/07\/image-1.png\" class=\"elementor-animation-grow attachment-full size-full wp-image-173\" alt=\"\" srcset=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/07\/image-1.png 512w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/07\/image-1-300x300.png 300w, https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/07\/image-1-150x150.png 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/><\/figure><div class=\"elementor-image-box-content\"><h4 class=\"elementor-image-box-title\">Kim<\/h4><p class=\"elementor-image-box-description\">I\u2019ve worked in medical publishing occupations for 32 years, 20 of which are in agency environments and 13 so far in rare diseases. Rare disease work allows me to meld the intricacies of anatomy and genetics with the tangible impact of care on patients\u2019 and families\u2019 experience. I\u2019m humbled by and constantly learning from the insight and dedication of our physician collaborators. As a person with a common motor disability whose prose is able-bodied, I find publishing, educating, and communicating on rare diseases affecting mobility to be a meaningful act of solidarity.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<div class=\"elementor-swiper-button elementor-swiper-button-prev\" role=\"button\" tabindex=\"0\" aria-label=\"Previous\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-eicon-chevron-left\" viewBox=\"0 0 1000 1000\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M646 125C629 125 613 133 604 142L308 442C296 454 292 471 292 487 292 504 296 521 308 533L604 854C617 867 629 875 646 875 663 875 679 871 692 858 704 846 713 829 713 812 713 796 708 779 692 767L438 487 692 225C700 217 708 204 708 187 708 171 704 154 692 142 675 129 663 125 646 125Z\"><\/path><\/svg>\t\t\t<\/div>\n\t\t\t<div class=\"elementor-swiper-button elementor-swiper-button-next\" role=\"button\" tabindex=\"0\" aria-label=\"Next\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-eicon-chevron-right\" viewBox=\"0 0 1000 1000\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M696 533C708 521 713 504 713 487 713 471 708 454 696 446L400 146C388 133 375 125 354 125 338 125 325 129 313 142 300 154 292 171 292 187 292 204 296 221 308 233L563 492 304 771C292 783 288 800 288 817 288 833 296 850 308 863 321 871 338 875 354 875 371 875 388 867 400 854L696 533Z\"><\/path><\/svg>\t\t\t<\/div>\n\t\t\t\t\t<div class=\"swiper-pagination\"><\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-be5ae37 e-flex e-con-boxed e-con e-parent\" data-id=\"be5ae37\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-da3b685 elementor-widget elementor-widget-heading\" data-id=\"da3b685\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">How is rare disease different?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e4e5724 elementor-widget elementor-widget-heading\" data-id=\"e4e5724\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">People always say rare is different. We agree.<br>That\u2019s why you need an agency that thinks and acts differently.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-05d82aa elementor-testimonial--skin-default elementor-testimonial--layout-image_inline elementor-testimonial--align-center elementor-widget elementor-widget-testimonial-carousel\" data-id=\"05d82aa\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;slides_per_view&quot;:&quot;1&quot;,&quot;slides_to_scroll&quot;:&quot;1&quot;,&quot;autoplay_speed&quot;:2500,&quot;space_between&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:0,&quot;sizes&quot;:[]},&quot;speed&quot;:500,&quot;autoplay&quot;:&quot;yes&quot;,&quot;loop&quot;:&quot;yes&quot;,&quot;space_between_tablet&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:10,&quot;sizes&quot;:[]},&quot;space_between_mobile&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:10,&quot;sizes&quot;:[]}}\" data-widget_type=\"testimonial-carousel.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-swiper\">\n\t\t\t\t\t<div class=\"elementor-main-swiper swiper\" role=\"region\" aria-roledescription=\"carousel\" aria-label=\"Phrases\">\n\t\t\t\t<div class=\"swiper-wrapper\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial__content\">\n\t\t\t\t\t<div class=\"elementor-testimonial__text\">\n\t\t\t\t\t\tCaregiver burden can be intense and is often forgotten.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-testimonial__footer\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial__content\">\n\t\t\t\t\t<div class=\"elementor-testimonial__text\">\n\t\t\t\t\t\tRare is where you have little to no available literature.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-testimonial__footer\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial__content\">\n\t\t\t\t\t<div class=\"elementor-testimonial__text\">\n\t\t\t\t\t\tRare is opportunity with a mission.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-testimonial__footer\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial__content\">\n\t\t\t\t\t<div class=\"elementor-testimonial__text\">\n\t\t\t\t\t\tRare is finding beauty in uniqueness.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-testimonial__footer\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial__content\">\n\t\t\t\t\t<div class=\"elementor-testimonial__text\">\n\t\t\t\t\t\tRare is where your life turns upside down, and you wouldn\u2019t have it any other way.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-testimonial__footer\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial__content\">\n\t\t\t\t\t<div class=\"elementor-testimonial__text\">\n\t\t\t\t\t\tSo many diseases that are so poorly understood.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-testimonial__footer\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial__content\">\n\t\t\t\t\t<div class=\"elementor-testimonial__text\">\n\t\t\t\t\t\tRare is urgent, every second counts.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-testimonial__footer\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial__content\">\n\t\t\t\t\t<div class=\"elementor-testimonial__text\">\n\t\t\t\t\t\tParents know something is wrong \u2013 often when physicians don\u2019t.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-testimonial__footer\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial__content\">\n\t\t\t\t\t<div class=\"elementor-testimonial__text\">\n\t\t\t\t\t\tRare is community.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-testimonial__footer\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-171320c e-flex e-con-boxed e-con e-parent\" data-id=\"171320c\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5d024ec elementor-widget elementor-widget-heading\" data-id=\"5d024ec\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">our clients + Partners<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fbc869d elementor-widget elementor-widget-heading\" data-id=\"fbc869d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h5 class=\"elementor-heading-title elementor-size-default\">Our approach to scientific communications celebrates that rare patients, advocates, and caregivers are critical shapers of their rare disease ecosystem.<\/h5>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-514e697 elementor-widget elementor-widget-image-carousel\" data-id=\"514e697\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;slides_to_show&quot;:&quot;6&quot;,&quot;navigation&quot;:&quot;none&quot;,&quot;image_spacing_custom&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:60,&quot;sizes&quot;:[]},&quot;speed&quot;:500,&quot;image_spacing_custom_tablet&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;image_spacing_custom_mobile&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]}}\" data-widget_type=\"image-carousel.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-image-carousel-wrapper swiper\" role=\"region\" aria-roledescription=\"carousel\" aria-label=\"Image Carousel\" dir=\"ltr\">\n\t\t\t<div class=\"elementor-image-carousel swiper-wrapper\" aria-live=\"polite\">\n\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"1 of 6\"><figure class=\"swiper-slide-inner\"><img decoding=\"async\" class=\"swiper-slide-image\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2024\/11\/Pfizer_2021.svg_.png\" alt=\"Pfizer_(2021).svg\" \/><\/figure><\/div><div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"2 of 6\"><figure class=\"swiper-slide-inner\"><img decoding=\"async\" class=\"swiper-slide-image\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2024\/11\/astrazeneca-logo.png\" alt=\"astrazeneca-logo\" \/><\/figure><\/div><div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"3 of 6\"><figure class=\"swiper-slide-inner\"><img decoding=\"async\" class=\"swiper-slide-image\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/03\/umdf.png\" alt=\"umdf\" \/><\/figure><\/div><div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"4 of 6\"><figure class=\"swiper-slide-inner\"><img decoding=\"async\" class=\"swiper-slide-image\" 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data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;slides_to_show&quot;:&quot;6&quot;,&quot;navigation&quot;:&quot;none&quot;,&quot;image_spacing_custom&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:60,&quot;sizes&quot;:[]},&quot;speed&quot;:500,&quot;image_spacing_custom_tablet&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;image_spacing_custom_mobile&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]}}\" data-widget_type=\"image-carousel.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-image-carousel-wrapper swiper\" role=\"region\" aria-roledescription=\"carousel\" aria-label=\"Image Carousel\" dir=\"ltr\">\n\t\t\t<div class=\"elementor-image-carousel swiper-wrapper\" aria-live=\"polite\">\n\t\t\t\t\t\t\t\t<div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"1 of 6\"><figure class=\"swiper-slide-inner\"><img decoding=\"async\" class=\"swiper-slide-image\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2024\/11\/SOBI_logo_PNG_0-1.png\" alt=\"SOBI_logo_PNG_0\" \/><\/figure><\/div><div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"2 of 6\"><figure class=\"swiper-slide-inner\"><img decoding=\"async\" class=\"swiper-slide-image\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2024\/11\/Orchard-New-Logo-102419-v01-rgb.png\" alt=\"Orchard-New-Logo-102419-v01-rgb\" \/><\/figure><\/div><div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"3 of 6\"><figure class=\"swiper-slide-inner\"><img decoding=\"async\" class=\"swiper-slide-image\" src=\"https:\/\/rarelifesolutions.com\/wp-content\/uploads\/2025\/03\/Regeneron-logo.png\" alt=\"Regeneron-logo\" \/><\/figure><\/div><div class=\"swiper-slide\" role=\"group\" aria-roledescription=\"slide\" aria-label=\"4 of 6\"><figure 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\/><\/figure><\/div>\t\t\t<\/div>\n\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>WE KNOW RARE.WE THINK RARE. We improve rare drug development and commercialization for industry and the families they serve. Contact us For us, it&#8217;s personal. Who We Are Individually we are scientists, planners, creatives, writers, entrepreneurs, thinkers, and doers. We are also the parent of a child with a rare disease, we are the friend [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"footnotes":""},"class_list":["post-29","page","type-page","status-publish","hentry"],"featured_image_src":null,"featured_image_src_square":null,"_links":{"self":[{"href":"https:\/\/rarelifesolutions.com\/index.php?rest_route=\/wp\/v2\/pages\/29","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarelifesolutions.com\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rarelifesolutions.com\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rarelifesolutions.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarelifesolutions.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=29"}],"version-history":[{"count":0,"href":"https:\/\/rarelifesolutions.com\/index.php?rest_route=\/wp\/v2\/pages\/29\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarelifesolutions.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=29"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}